Will's PEG surgery is scheduled for next Thursday. He has been on a medical grade food supplement for about 5 days and has gained a half pound! I am so proud of him. His solid food intake is basically, well, limited. He may have one or two goldfish crackers or half a pack of fruit snacks in a day. It's going to be difficult to see him with the feeding tube.. it will be a harsh reminder of this terrible disease. If it can help him though become stronger then we are all for it. My poor sweet boy. My mom and sister will be here to help. They are my support system. Without them I am not sure what I would do.
We met with the occupational therapist yesterday. She gave Will a series of tests to check his developmental skills. I am happy to say that he is above average on most skills. However, she is very concerned about his hypotonic and weak state. His hands and upper body were trembling. I think it was partly because he was nervous. He still can't properly throw or kick a ball. He just doesn't have the strength. He had fun though trying! We meet with the physical therapist next week. He is such a happy boy and I am so happy to be his momma! I love him with all my heart and more.
Will and Lauren (3 months)